European rare
bone forum

A patient-led Forum and networking arena between Patient Organisations, Scientific Societies and Industry working in Rare Bone conditions

Study on patients’ priorities and expectations

Study on patients’ priorities and expectations

A recently published study with participation of Inês Alves from ANDO Portugal (Patient Group Representative of the ERBF), highlights the importance of natural history of RBMCs...

Rare Bone Disease highlights at ASBMR 2021

Rare Bone Disease highlights at ASBMR 2021

Listen to the podcasts and access educational resources covering the key rare bone disease highlights from the American Society for Bone and Mineral Research 2021...

"Call to action" project

Inês Alves, on behalf of the ERBF, requested a proposal from Costello Medical to assist in a ‘call to action’ to shorten the time between research and clinical care in Rare Bone Diseases...

Rare Bone Conditions in numbers

1 +
SKELETAL DYSPLASIAS​
1 +
metabolic bone diseases
1 +
people affected