European rare
bone forum

A patient-led Forum and networking arena between Patient Organisations, Scientific Societies and Industry working in Rare Bone conditions

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NEWS

Improving care for people with RBDs

Improving care for people with RBDs

This recently published article intends to outline the priorities to overcome the challenges and improve the lives of people living with RBDs.

ECTS-ISCBH Collab Workshop with ERBF

ECTS-ISCBH Collab Workshop with ERBF

On the 14 April we will be moderating a workshop at the ECTS 2023 Congress in Liverpool. Starts at 2 pm (GMT+1). Take a look at the programme.

Survey: unmet needs in RBDs

Survey: unmet needs in RBDs

We are conducting a survey on unmet needs in RBDs, challenges in research, and solutions to overcome these barriers. Take part by Feb 6.

Sponsored Educational Symposium

Sponsored Educational Symposium

"How to overcome research barriers on RBDs". This will be the main topic on our sponsored Educational Symposium at the ECTS Congress 2022.

Rare Bone Conditions in numbers

SKELETAL DYSPLASIAS​
1 +
metabolic bone diseases
1 +
people affected
1 +