In 2018, ECTS envisioned the creation of a European Multi-Stakeholder Network for Rare Bone Diseases with the goal to provide a platform where representatives from research, medical and patient communities can meet, learn from each other, and review key topics in the field of rare bone diseases.

One year later the European Rare Bone Forum (ERBF) was created and now, March 2021, we are moving forward with our new website. Our primary aims are to build a sense of community and collaboration to provide an opportunity for patient organisations to engage with research, to hear the latest developments and discuss ways to collaborate.
Know more about ERBF here and visit our new website: www.rarebone.org