The third episode of Alexion’s Rare Conversations event series, in cooperation with BPI, will be a forum to discuss specificities and needs of research in rare diseases. Indeed, research and development of new treatments in rare and ultra-rare diseases faces its own challenges, due to missing knowledge of the disease, small patient population, difficulties to conduct clinical trials and needs for high investments.
This exchange of views will allow to get a full picture on needs and specificities in rare disease research, therefore defining the necessary steps to undertake to reach further success in this area for the benefit of rare disease patients. Alexion will offer a keynote speech, to present its commitment to research in rare diseases. This will be followed by a panel discussion to understand and share specificities from different stakeholders’ perspective: research institutions, patients, clinicians. The panellists will be able to articulate on their direct experience and outline their view regarding challenges and opportunities in rare disease research. The panel will be followed by a Q&A session with the audience. The event will be wrapped up by BPI.
Inês Alves will be speaking at this event, on behalf of ERBF.
To attend this webinar use this Registration link: https://lnkd.in/dQ7G7vT