Projects

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Projects

The “call to action’ project aims to find the answers on how to shorten the time between research and clinical care, with effective access to treatments for Rare Bone Diseases (RBD).; examine the current RBD research landscape, identify unmet needs in RBD and their societal impact, identify current gaps or barriers that are hindering R&D processes, and propose solutions to address these.

Phase 1 of the ‘call to action’ is set to improve access to treatments for RBD. The phase components will focus on collecting evidence to provide valuable insights into RBD research including the identification of key opinion leaders (KOLs) and top research institutes, key unmet needs and their societal impact, gaps or barriers hindering R&D progress, and potential solutions to address key challenges. Findings from this project will feed into Phase 2 of the ‘call to action’ which aims to influence policies at the national and European level.

Kick-off Q4 2021 and is anticipated to take 12 months, from initiation to completion

The “call to action’ project aims to find the answers on how to shorten the time between research and clinical care, with effective access to treatments for Rare Bone Diseases (RBD).; examine the current RBD research landscape, identify unmet needs in RBD and their societal impact, identify current gaps or barriers that are hindering R&D processes, and propose solutions to address these.

Phase 1 of the ‘call to action’ is set to improve access to treatments for RBD. The phase components will focus on collecting evidence to provide valuable insights into RBD research including the identification of key opinion leaders (KOLs) and top research institutes, key unmet needs and their societal impact, gaps or barriers hindering R&D progress, and potential solutions to address key challenges. Findings from this project will feed into Phase 2 of the ‘call to action’ which aims to influence policies at the national and European level.

Kick-off Q4 2021 and is anticipated to take 12 months, from initiation to completion