Rare Bone Disorders Archives | European Rare Bone Forum https://rarebone.org/tag/rare-bone-disorders/ Fri, 30 Apr 2021 15:28:44 +0000 en-US hourly 1 https://wordpress.org/?v=7.0 https://rarebone.org/wp-content/uploads/2021/03/cropped-ERBF_site_icon-32x32.png Rare Bone Disorders Archives | European Rare Bone Forum https://rarebone.org/tag/rare-bone-disorders/ 32 32 ERBF Featured on RARE Revolution Magazine https://rarebone.org/2021/04/30/erbf-featured-on-rare-revolution-magazine/ Fri, 30 Apr 2021 15:19:43 +0000 https://rarebone.org/?p=2063 We are happy to share the RARE Revolution Magazine latest issue where the European Rare Bone Forum (ERBF) is featured in an interview with one of our founders, Inês Alves.

The post ERBF Featured on RARE Revolution Magazine appeared first on European Rare Bone Forum.

]]> RARE Revolution Magazine is a quarterly, first of its kind, digital magazine for the Rare Disease Community. It seeks to give a voice to those affected by rare conditions and the charities and organisations that represent and support them.

The latest edition of this magazine has Ipsen serving as the editorial sponsor and focuses on Rare Bone Disorders. We are happy to share this issue where the European Rare Bone Forum (ERBF) is featured in an interview with one of our founders, Inês Alves (patient expert and ePAG for the ERN BOND, and also founder of Beyond Achondroplasia and ANDO Portugal).

Read the full interview:

For the full issue of the RARE BONE edition of RARE Revolution Magazine click here.

To learn more about the ERBF work, closing the gap between researchers, pharmaceutical companies and patient organisations, visit our website.

The post ERBF Featured on RARE Revolution Magazine appeared first on European Rare Bone Forum.

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