Rare Bone Disease Summit 2021
The Rare Bone Disease Summit 2021 aims to collaborate towards improving the lives of people living with rare bone conditions.
Rare Disease Investigation
The CALL TO ACTION project
The European Rare Bone Forum, requested a proposal from Costello Medical to assist in a call to action to shorten the time between research and clinical care.
Rare Conversations #3 – Research in Rare Disease
The third episode of Alexion’s Rare Conversations event series, in cooperation with BPI, will be a forum to discuss specificities and needs of research in rare diseases. Indeed, research and development of new treatments in rare and ultra-rare diseases faces its own challenges, due to missing knowledge of the disease, small patient population, difficulties to…