Rare Bone Disease Summit 2021
The Rare Bone Disease Summit 2021 aims to collaborate towards improving the lives of people living with rare bone conditions.
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Rare Disease Investigation
The CALL TO ACTION project
The European Rare Bone Forum, requested a proposal from Costello Medical to assist in a call to action to shorten the time between research and clinical care.
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Rare Conversations #3 – Research in Rare Disease
The third episode of Alexion’s Rare Conversations event series, in cooperation with BPI, will be a forum to discuss specificities and needs of research in rare diseases. Indeed, research and development of new treatments in rare and ultra-rare diseases faces its own challenges, due to missing knowledge of the disease, small patient population, difficulties to
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