Osteogenesis Imperfecta Archives | European Rare Bone Forum https://rarebone.org/tag/osteogenesis-imperfecta/ Tue, 13 Jul 2021 09:32:56 +0000 en-US hourly 1 https://wordpress.org/?v=7.0 https://rarebone.org/wp-content/uploads/2021/03/cropped-ERBF_site_icon-32x32.png Osteogenesis Imperfecta Archives | European Rare Bone Forum https://rarebone.org/tag/osteogenesis-imperfecta/ 32 32 THE IMPACT SURVEY IS LIVE – SPREAD THE WORD! https://rarebone.org/2021/07/06/impact_survey_oi/ Tue, 06 Jul 2021 12:48:10 +0000 https://rarebone.org/?p=2123 The IMPACT Survey is a joint initiative between the umbrella organization Osteogenesis Imperfecta Federation Europe (OIFE), the OI Foundation & the pharma company Mereo BioPharma.

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]]> The IMPACT Survey is a joint initiative between the umbrella organization Osteogenesis Imperfecta Federation Europe (OIFE), the OI Foundation & the pharma company Mereo BioPharma.

The English version of The IMPACT Survey is now live and will be running until 10th September 2021. On July 8th the survey will also be launched in Spanish, French, German, Dutch, Italian and Russian.

The IMPACT Survey is aimed at capturing and quantifying the real impact OI has on people’s lives to enable better diagnosis, treatment and care, and to support availability of potential future treatments for OI. The IMPACT Survey is for people with OI, and parents/caregivers of children with OI. Read more about the background of the global research project at the resource page: www.oife.org/impact

Please spread the word, use the hashtag #impactsurveyOI and encourage participation in what we hope will be a powerful opportunity to have an impact on the future of OI!

Find out more at: www.impactsurveyoi.com

Find out about Clinical Trials on this condition on the ERBF Research Page

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