European rarebone forum A patient-led Forum and networking arena between Patient Organisations, Scientific Societies and Industry working in Rare Bone conditions icon2 Join us NEWS The latest from ERBF: ERBF at the ASBMR 2025 Annual Meeting in Seattle August 22, 2025 White Paper Published: Mapping the Future of R&D for Rare Bone Conditions in Europe May 14, 2025 ERBF to Present White Paper at ESPE-ESE Joint Congress 2025 May 10, 2025 ABOUT US Mission Steering group Members Rare Bone Conditions in numbers SKELETAL DYSPLASIAS​ 1 + metabolic bone diseases 1 + people affected 1 +