European rare
bone forum
A patient-led Forum and networking arena between Patient Organisations, Scientific Societies and Industry working in Rare Bone conditions
ABOUT US
NEWS
Improving care for people with RBDs
This recently published article intends to outline the priorities to overcome the challenges and improve the lives of people living with RBDs.
ECTS-ISCBH Collab Workshop with ERBF
On the 14 April we will be moderating a workshop at the ECTS 2023 Congress in Liverpool. Starts at 2 pm (GMT+1). Take a look at the programme.
Survey: unmet needs in RBDs
We are conducting a survey on unmet needs in RBDs, challenges in research, and solutions to overcome these barriers. Take part by Feb 6.
Sponsored Educational Symposium
"How to overcome research barriers on RBDs". This will be the main topic on our sponsored Educational Symposium at the ECTS Congress 2022.
Rare Bone Conditions in numbers
SKELETAL DYSPLASIAS​
1
+
metabolic bone diseases
1
+
people affected
1
+