The ASBMR 2025 Annual Meeting will take place from September 5–8, 2025, at the Seattle Convention Center, Seattle, Washington, USA. This meeting is the world’s leading international forum for bone, mineral and musculoskeletal research, bringing together more than 2,500 participants from over 50 countries, including clinicians, researchers, advocacy groups, patient organisations and healthcare professionals.

The program will feature around 100 scientific sessions and close to 1,000 poster presentations, covering a wide range of advances from fundamental science to clinical applications. A key highlight is the ASBMR/RBDA Pre-Meeting Symposium on Rare Bone Diseases: From the Genome to the Lived Experience, scheduled for September 4, 2025, which will focus on how cutting-edge science and the lived experience of people with rare bone conditions can converge to shape better care, research, and innovation.

ERBF contribution

The European Rare Bone Forum (ERBF) will be represented at this meeting through the participation of Catherine Nester, ERBF Board and Steering Group member. She will present a scientific poster entitled: “Accelerating Research and Development for Rare Bone Conditions in Europe: A Multistakeholder Call-to-Action.” ANDO Portugal, as a member of ERBF, played a key role in its realization, collaborating in the authorship of the abstract, submission, and preparation of the presentation and graphics of the poster.

This presentation is directly connected to the important work that ERBF has been leading since 2022, namely the development of a white paper addressing the challenges faced in research for rare bone conditions (RBCs). The white paper proposes concrete solutions to overcome barriers in the research and development (R&D) pathway and serves as a call to action to all RBC stakeholders — including patient organisations, healthcare professionals, researchers, industry, and policymakers.

The ERBF white paper was developed in collaboration with Costello Medical and highlights the need for collaborative, cross-sector approaches to accelerate research and bring meaningful impact to people living with rare bone conditions. Through this participation at the ASBMR 2025 Annual Meeting, ERBF strengthens its commitment to ensuring that the voices and needs of the rare bone community in Europe are represented in the global scientific arena.

It was officially launched during the Joint Congress of the European Society of Paediatric Endocrinology (ESPE) and the European Society of Endocrinology (ESE) on 11 May 2025.

Read the full white paper here: Research and Development of Treatments for Rare Bone Conditions in Europe

Stay tuned to learn more and to be updated on our work on Rare Bone Conditions.

Visit the European Rare Bone Forum for more news and information on Rare Bone Conditions here

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Our mission is to provide a valorous and constructive patient-led forum where European patient organisations, scientific societies, academia, pharmaceutical companies, expert clinicians and researchers, can discuss and network, fostering early collaborations, to improve the health outcomes and care in the field of rare bone diseases and empower the rare disease community across Europe. Know more.

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