Mission

PURPOSE AND OBJECTIVES

Our mission is to provide a valorous and constructive patient-led forum where European patient organisations, scientific societies, academia, pharmaceutical companies, expert clinicians and researchers, can discuss and network, fostering early collaborations, to improve the health outcomes and care in the field of rare bone diseases and empower the rare disease community across Europe.

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SHARE

best practices and exchange information between Rare Bone
Disease organisations.

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PROMOTE

education, multi-stakeholder collaboration and research in Rare
Bone Diseases

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Support

joint activities and projects
between Rare Bone Disease organisations