PURPOSE AND OBJECTIVES
Our mission is to provide a valorous and constructive patient-led forum where European patient organisations, scientific societies, academia, pharmaceutical companies, expert clinicians and researchers, can discuss and network, fostering early collaborations, to improve the health outcomes and care in the field of rare bone diseases and empower the rare disease community across Europe.
best practices and exchange information between Rare Bone
education, multi-stakeholder collaboration and research in Rare
joint activities and projects
between Rare Bone Disease organisations