Online Survey
As part of the Call to Action project, we are conducting a survey on unmet needs in Rare Bone Conditions, challenges in research, and solutions to overcome these barriers. Take part by February 6, 2023.
You should know
The deadline for participation in this survey has been extended to February 6, 2023.
Who can take part:
- Person who has a rare bone condition
- Family member/caregiver of person with a rare bone condition
- Healthcare professional
- Academic researcher
- Industry representative
- Policymaker or policy representative
- Patient organisation representative
We would like to invite you to take part in this survey. The survey is available in 5 languages (English, French, German, Italian and Spanish), takes no more than 10 minutes to complete, and all responses are anonymous. Access the survey in your preferred language using the buttons below: