The European Rare Bone Forum (ERBF) is proud to announce its participation in the upcoming ESPE-ESE Joint Congress 2025, a leading event bringing together experts in pediatric and adult endocrinology.
At 12:40 CET on 11 May, ERBF will present its recently published white paper titled: “Research and Development of Treatments for Rare Bone Conditions in Europe”
This important work, developed in collaboration with Costello Medical, provides a comprehensive overview of the current challenges, gaps, and opportunities in advancing therapies for rare bone diseases across Europe. This document offers an in-depth analysis of the current landscape of research and innovation in the field of rare bone diseases. It identifies key barriers to the development of effective therapies, highlights disparities in access to care across Europe, and outlines actionable recommendations to accelerate progress through policy, funding, and multi-stakeholder collaboration.
The presentation will be delivered by Inês Alves, representing both ERBF and ANDO Portugal, who will highlight key findings and strategic recommendations to improve patient outcomes and foster collaboration across the rare bone community. We invite all attendees to join this session and take part in the conversation shaping the future of rare bone disease research and innovation.
This session is an important milestone in ERBF’s mission to advance research, drive awareness, and support the development of life-changing treatments for people affected by rare bone conditions.
Learn more about the congress: ESPE-ESE Joint Congress 2025
Take a look at the Congress Programme
Read about ERBF’s initiatives: www.rarebone.org
Stay tuned to learn more and to be updated on our work on Rare Bone Conditions.
Visit the European Rare Bone Forum for more news and information on Rare Bone Conditions here
