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	<title>call to action Archives | European Rare Bone Forum</title>
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		<title>The CALL TO ACTION project</title>
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		<pubDate>Fri, 15 Oct 2021 16:10:27 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Project presentation]]></category>
		<category><![CDATA[call to action]]></category>
		<category><![CDATA[Costello Medical]]></category>
		<category><![CDATA[ERBF]]></category>
		<category><![CDATA[Project]]></category>
		<category><![CDATA[Rare Bone Disease]]></category>
		<category><![CDATA[Rare Disease Investigation]]></category>
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					<description><![CDATA[<p>The European Rare Bone Forum, requested a proposal from Costello Medical to assist in a call to action to shorten the time between research and clinical care.</p>
<p>The post <a href="https://rarebone.org/2021/10/15/erbf-call-to-action/">The CALL TO ACTION project</a> appeared first on <a href="https://rarebone.org">European Rare Bone Forum</a>.</p>
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<p class="wp-block-paragraph">How to shorten the time between <a href="https://rarebone.org/research/" target="_blank" rel="noreferrer noopener">research</a> and clinical care, with effective access to treatments for <strong>Rare Bone Diseases</strong> (RBD)?</p>



<p class="wp-block-paragraph">The Call to Action project is a ERBF initiative that aims to analyse the current RBD research landscape, identify unmet needs in RBD and their societal impact, identify current gaps or barriers that are hindering R&amp;D processes, and propose solutions to address these.</p>



<p class="wp-block-paragraph"><strong><em>Phase 1</em></strong> of the will focus on collecting evidence to provide valuable insights into&nbsp;<a href="https://rarebone.org/news-rare-bone-diseases/research/" target="_blank" rel="noreferrer noopener"><strong>RBD research</strong></a>&nbsp;including the identification of key opinion leaders (KOLs) and top research institutes, key unmet needs and their societal impact, gaps or barriers hindering R&amp;D progress, and potential solutions to address key challenges. Findings from this project will feed into&nbsp;<strong><em>Phase 2</em></strong>&nbsp;of the ‘call to action’ which aims to influence policies at the national and European level.</p>



<p class="wp-block-paragraph"><meta charset="utf-8">Find out more about the <a href="https://rarebone.org/">European Rare Bone Forum</a> Call to Action <strong><a href="https://rarebone.org/news-rare-bone-diseases/projects/">here</a></strong>.</p>



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<p class="wp-block-paragraph"></p>
<p>The post <a href="https://rarebone.org/2021/10/15/erbf-call-to-action/">The CALL TO ACTION project</a> appeared first on <a href="https://rarebone.org">European Rare Bone Forum</a>.</p>
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