The third episode of Alexion’s Rare Conversations event series, in cooperation with BPI, will be a forum to discuss specificities and needs of research in rare diseases. Indeed, research and development of new treatments in rare and ultra-rare diseases faces its own challenges, due to missing knowledge of the disease, small patient population, difficulties to…
Rare Conversations #3 – Research in Rare Disease Read More »
On Thursday February 18th, 16h, watch the European Rare Bone Forum Webinar on Rare Bone Conditions Research, with speaker Elvire Gouze (Innoskel Founder & CEO). This event has the support of the European Calcified Tissue Society (ECTS).
Paving new roads in Rare Bone Conditions Research Read More »
Please join us on Thursday October 29, 2020 15h CET. Julia Quitmann (University Medical Center, Hamburg – Eppendorf) will be our Speaker addressing Quality of Life Studies in Rare Bone Diseases: why, who and how? This Webinar has the support of the European Calcified Tissue Society (ECTS).
QoL Studies in Rare Bone Diseases: why, who & how? Read More »
