White Paper Published: Mapping the Future of R&D for Rare Bone Conditions in Europe. Research & Development of Treatments for Rare Bone Conditions in Europe, developed in collaboration with Costello Medical.
White Paper Published: Mapping the Future of R&D for Rare Bone Conditions in Europe Read More »
Rare Bone Diseases (RBDs) represent a heterogeneous group of 771 rare conditions of genetic origin that affect the development, growth, and structure of bones and cartilage, causing short stature and abnormalities of the limbs, extremities, and spine. A recently published article called Improving care pathways for people living with rare bone diseases intends to outline the priorities for people with these conditions.
ERBF to Present White Paper at ESPE-ESE Joint Congress 2025 Read More »
Rare Bone Diseases (RBDs) represent a heterogeneous group of 771 rare conditions of genetic origin that affect the development, growth, and structure of bones and cartilage, causing short stature and abnormalities of the limbs, extremities, and spine. A recently published article called Improving care pathways for people living with rare bone diseases intends to outline the priorities for people with these conditions.
Improving care pathways for people living with rare bone diseases Read More »
We will be participating in the ECTS Congress 2023 in Liverpool. We will be moderating an ECTS-ISCBH Workshop on April 14.
ECTS-ISCBH workshop in conjunction with the European Rare Bone Forum Read More »
“How to overcome research barriers on rare bone conditions” will be the main topic of our Sponsored Educational Symposium at the ECTS Congress 2022 — 8th May | 13.30 | Auditorium 101. The whole research process entails various steps and demands collaboration. Researchers, clinicians and patients often encounter multi-level barriers in the development and/or execution
ERBF Sponsored Educational Symposium Read More »
We are pleased to announce that we will be participating in the ECTS Congress 2022 in Helsinki. We will sponsor an Education Symposium and the European Rare Bone Forum General Meeting will also take place during the event.
ERBF Education Symposium and General Meeting at ECTS 2022 Read More »
