The IMPACT Survey is a joint initiative between the umbrella organization Osteogenesis Imperfecta Federation Europe (OIFE), the OI Foundation & the pharma company Mereo BioPharma.
THE IMPACT SURVEY IS LIVE – SPREAD THE WORD! Read More »
We are happy to share the RARE Revolution Magazine latest issue where the European Rare Bone Forum (ERBF) is featured in an interview with one of our founders, Inês Alves.
ERBF Featured on RARE Revolution Magazine Read More »
In 2018, ECTS envisioned the creation of a European Multi-Stakeholder Network for Rare Bone Diseases with the goal to provide a platform where representatives from research, medical and patient communities can meet, learn from each other, and review key topics in the field of rare bone diseases. One year later the European Rare Bone Forum (ERBF) was
Check out our new Website: rarebone.org Read More »
