Take the EuRR-Bone PROMs survey
If you have rare bone or endocrine condition, or are a physician who follows people with these conditions, give your opinion on what are the most important questions to ask about daily experiences and health needs.
News
Rare Bone Disease Summit 2021
The Rare Bone Disease Summit 2021 aims to collaborate towards improving the lives of people living with rare bone conditions.
The CALL TO ACTION project
The European Rare Bone Forum, requested a proposal from Costello Medical to assist in a call to action to shorten the time between research and clinical care.
ERBF Featured on RARE Revolution Magazine
We are happy to share the RARE Revolution Magazine latest issue where the European Rare Bone Forum (ERBF) is featured in an interview with one of our founders, Inês Alves.
Paving new roads in Rare Bone Conditions Research
On Thursday February 18th, 16h, watch the European Rare Bone Forum Webinar on Rare Bone Conditions Research, with speaker Elvire Gouze (Innoskel Founder & CEO). This event has the support of the European Calcified Tissue Society (ECTS).