News

PROM Survey

Take the EuRR-Bone PROMs survey

If you have rare bone or endocrine condition, or are a physician who follows people with these conditions, give your opinion on what are the most important questions to ask about daily experiences and health needs.

Rare Bone Disease Summit 2021

The Rare Bone Disease Summit 2021 aims to collaborate towards improving the lives of people living with rare bone conditions.

ERBF Call to Action

The CALL TO ACTION project

The European Rare Bone Forum, requested a proposal from Costello Medical to assist in a call to action to shorten the time between research and clinical care.

ERBF Featured on RARE Revolution Magazine

We are happy to share the RARE Revolution Magazine latest issue where the European Rare Bone Forum (ERBF) is featured in an interview with one of our founders, InĂªs Alves.

Paving new roads in Rare Bone Conditions Research

On Thursday February 18th, 16h, watch the European Rare Bone Forum Webinar on Rare Bone Conditions Research, with speaker Elvire Gouze (Innoskel Founder & CEO). This event has the support of the European Calcified Tissue Society (ECTS).